Patient Advocacy Groups

Patient Advocacy Groups 2017-07-18T14:41:33+00:00

There are more than 200 organizations that are members of the Coalition, including the patient advocacy groups listed below, as well as academic Radiology Departments, imaging societies, and industry companies. This combination of perspectives ensures that the voice of imaging research will be both unified and diverse. Learn more about the organization by visiting the CIBR FAQ or visit our membership inquiry page and provide us with information on your organization and we will follow up with you promptly.

Download the CIBR Factsheet for more details.

22q Family Foundation

Action to Cure Kidney Cancer

AdMeTech Foundation

Alliance for Aging Research

Alliance for Prostate Cancer Prevention

Alpha-1 Foundation

Alzheimer’s Foundation of America

American Brain Tumor Association

American Institute for Medical and Biological Engineering

American Parkinson Disease Association

Anti-Cancer Club

Are You Dense, Inc.

Are You Dense Advocacy, Inc.

Arthritis Foundation

Association for Research in Vision and Ophthalmology

Association of Community Cancer Centers

Biotechnology Innovation Organization

Blinded Veterans Association

Brain Injury Association of America

Cancer Schmancer

CADASIL Together We Have Hope NonProfit Organization

Children With Diabetes Foundation

Children’s Craniofacial Association

Christopher and Dana Reeve Foundation

Colon Cancer Alliance

Community Oncology Alliance

Connect2NICU

Cooley’s Anemia Foundation

COPD Foundation

Cure HHT

CurePSP

Cystic Fibrosis Foundation

Daniella Maria Arturi Foundation

DystoniaAware

Fibroid Relief

Fight for Sight

Fight Colorectal Cancer

First Candle

FORCE: Facing Our Risk of Cancer Empowered

Focused Ultrasound Surgery Foundation

Gastroparesis: Fighting for Change

Globe-athon

Huntington’s Disease Society of America

Hydrocephalus Association

Hypertrophic Cardiomyopathy Association

International Alliance for Pediatric Stroke

International & American Associations for Dental Research

International Essential Tremor Foundation

International Eye Foundation

International WAGR/11p Deletion Syndrome Association

Intracranial Hypertension Research Foundation

Juvenile Diabetes Research Foundation

Kidney Cancer Association

Lighthouse International

Love is Out There Campaign 

Lung Cancer Alliance

Lung Cancer Circle of Hope

Lupus and Allied Diseases Association, Inc.

MaleCare

Men’s Health Network

Mental Health America

myHeart, yourHands, Inc.

National Alliance for Eye and Vision Research

National Ataxia Foundation

National Brain Tumor Society

National Cervical Cancer Coalition

National Fibromyalgia & Chronic Pain Association

The National LGBT Cancer Project

National Patient Advocate Foundation

National Lung Cancer Partnership

Neuroendocrine Tumor Research Foundation

Oley Foundation

Oxalosis & Hyperoxaluria Foundation

Pink Concussions

Power of Pain Foundation

Prevent Cancer Foundation

Prostate Cancer International

Prostate Health Education Network

Pulmonary Fibrosis Foundation

Reaching for the Stars: A Foundation of Hope for Children with Cerebral Palsy

Sex and Gender Women’s Health Collaborative

Society for Women’s Health Research

Spina Bifida Association

StopAfib.org

Sugar Mommas: Women with Type 1 Diabetes

Susan G. Komen for the Cure

Taking Control of Your Diabetes

The Brain Aneurysm Foundation

The Coalition Against Pediatric Pain

The Dempster Family Foundation 

The I Have IIH Foundation

The Michael J. Fox Foundation

The World Pediatric Stroke Association (Brendon’s Smile)

Tuberous Sclerosis Alliance

United Spinal Association

Usher Syndrome Coalition

Us TOO International Prostate Cancer Education & Support Network

The VHL Alliance

Voices Against Brain Cancer

Worldwide Syringomyelia & Chiari Task Force, Inc.

YES! Beat Liver Tumors

ZERO – The Project to End Prostate Cancer